Seizure Help

[Welsh_red 5,085]

Last Monday my 14 year old daughter had a seizure in the house . Luckily my mrs was there and heard mumbling so went in to see and caught her getting up off the sofa having a tonic clonic seizure and caught her and put her in recovery position.  My mrs works in care for people with special needs so lots of them have epilepsy so she knows the protocol. Ambulance came and I rushed home from work .  She has 2-3 minutes fit then 10-15 mins not knowing where she is it whats happening and is all lucid . 

Day in hospital and zero head scan . Told us to go about life as normal because it may mever happen again . She went to play football last Sunday and was stretching in the warm up and had another seizure on the pitch.  Same protocol and same result in the hospital. We have a phone meeting tmrow with some neurological person and want her head scanned . If they can't sort it soon I will have to try private scan just to get it done 

We want to get a watch for epileptics that will send us a alert if she has one again . This is what we found. 

EpiMonitor | Exclusively Available from Epilepsy Alarms in the UK

WWW.EPILEPSYALARMS.CO.UK

---

Take control of your epilepsy with EpiMonitor, your complete companion for life – paired with...

  just wondering if anybody has any knowlesge on these things 

 

My head is dead at the moment. I looked up seizures online and read some terrifying things about the possibilities. 

This place can be a snake pit at times but ive seen some of the most genuine kind acts said and done on here.  If anybody has any history with seizures or epilepsy please let me know

[saluki bouy 944]

Can you afford to go private just to get sort of peace of mind the not knowing will be killing you am sure 

I went in for a op in October night a day 

hope you get some answers and a solution asap and your daughter gets her health back with no long lasting affects 

[Councilestatekid 2,187]

Mrs had them random they said wasn't epilepsy or anything asked if she stressed anxiety she said no had about 6 over first 3-4 month then just random not as often could do 3-4 month without 1 we never figured out what triggered then or what actually caused them prob went on for around 3 year then nothing not had 1 for over 10 years never found out what caused them or why pal hope daughter is OK and hopefully they will stop. A friend of ours had them his last scared him a bit he said when came round he thought was a child shouting for his dad and that anyway he stopped smoking the weed as he never drank or anything just had a smoke on a night was in his early 40s when they started anyway since stopping smoking weed he hasn't had 1 for 3 years now

[lurcherman 887 13,476]

Have to go private things like this or you’ll be waiting months and months.. especially if there already fobbing it off a bit. 
 

Even if it’s a few grand you will have your piece of mind. 

[Arry 26,037]

1 hour ago, Welsh_red said:

Last Monday my 14 year old daughter had a seizure in the house . Luckily my mrs was there and heard mumbling so went in to see and caught her getting up off the sofa having a tonic clonic seizure and caught her and put her in recovery position.  My mrs works in care for people with special needs so lots of them have epilepsy so she knows the protocol. Ambulance came and I rushed home from work .  She has 2-3 minutes fit then 10-15 mins not knowing where she is it whats happening and is all lucid . 

Day in hospital and zero head scan . Told us to go about life as normal because it may mever happen again . She went to play football last Sunday and was stretching in the warm up and had another seizure on the pitch.  Same protocol and same result in the hospital. We have a phone meeting tmrow with some neurological person and want her head scanned . If they can't sort it soon I will have to try private scan just to get it done 

We want to get a watch for epileptics that will send us a alert if she has one again . This is what we found. 

EpiMonitor | Exclusively Available from Epilepsy Alarms in the UK

WWW.EPILEPSYALARMS.CO.UK

---

Take control of your epilepsy with EpiMonitor, your complete companion for life – paired with...

  just wondering if anybody has any knowlesge on these things 

 

My head is dead at the moment. I looked up seizures online and read some terrifying things about the possibilities. 

This place can be a snake pit at times but ive seen some of the most genuine kind acts said and done on here.  If anybody has any history with seizures or epilepsy please let me know

I cant help I'm afraid and my heart goes out to you. Don't get fobbed off push for every thing.

Good luck with every thing.

Cheers Arry

[TOMO 29,778]

Lots of things can cause them...

But people with epilepsy can benefit from low carb diets....in fact studies were done over 100 years ago...they put epileptics on a pure meat carnivore diet...and it helped immensely...not saying it would help your daughter....but its out there on the net if you look...

Best wishes to ya...its always a nightmare when it's kids that are ill with something 

[lurcherman 887 13,476]

Having the second seizure should now meet the criteria for a immediate MRI which is better than a CT so push for that..

The kid next door had childhood epilepsy ( benign rolandic epilepsy) and has grown out of it now used to be scary though I’ve seen him do it on the playground.

Also normal for disorientation to last from minutes to hours. 

demand that MRI mate, hope all is well with her and do yourself a favour and keep off doctor google it will only raise your worries. 

[lurcherman 887 13,476]

Soz to rabbit on but I remember them saying if seizure lasts more than 5 minutes then strait to a and e 

[Greyman 32,832]

Sorry no help but good luck to you and the family mate

[WataWalloper 4,632]

Push for every test available, feel a knob fkr even saying as it’s not appropriate for this genuine thread but you’d get it if you was an immigrant, if you can go private, do it, if not push for everything an don’t take no for an answer

 

my younger brother was about 21 an had a few fits in space of a few month but then nowt ever happened again, but he was took to hospital an given scans an allsorts after the 2nd one, they said he had mild epilepsy but like I say just never come back after few months, he 40odd now, even tho he ain’t had one for years he ain’t ever tried passing his driving test cos them fits scared him an he said he couldn’t  trust himself on road ever 

Edited 5 hours ago by WataWalloper

[Franks dad 2,875]

My mum started having epileptic fits from the age of 18 , they never found out why they started .. can remember her having fits when I was 5-6 , was a horrible and  scary thing to see …. Tablets eventually reduced the fits to just vacant episodes , she never went to a nightclub or anywhere with flashing lights and was unable to take a driving test … hope you get it sorted ..best of luck

[Welsh_red 5,085]

3 hours ago, lurcherman 887 said:

Having the second seizure should now meet the criteria for a immediate MRI which is better than a CT so push for that..

The kid next door had childhood epilepsy ( benign rolandic epilepsy) and has grown out of it now used to be scary though I’ve seen him do it on the playground.

Also normal for disorientation to last from minutes to hours. 

demand that MRI mate, hope all is well with her and do yourself a favour and keep off doctor google it will only raise your worries. 

Im hoping the meeting with neurologist tommorow will mean we get a head scan.  Depending on timescale will decide if we go private . 

At the moment mrs has gone on sick from work for 2 weeks so that she is always around my daughter.  Ive gone to sleep on the sofa so my daughters on my side of the bed now so if anything happens at night my mrs is there.  

Fuckng stupid advice after the first seizure to carry on life as normal.  She could have been anywhere and had another seizure and not have anybody to catch her as she goes down 

In herself she is absolutly fine a hour after the seizure and coming out of it all . I cant help but stress inside my head 24/7 . I just want some sort of answers or feel something is moving forward 

After the second seizure when she was on the football pitch I was lying on the grass with her stroking her head making sure she kept her eyes open , her coach had been crying  , all the girls were in bits seeing their team mate and friend convulsing on the floor , the coach phoned up the league to tell them game was off and what happened.  The guy on the other end of the phone said " Havnt you got any more subs ? " . The coach went mental over the phone . The refferee came over as we were lifting my daughter up off the grass with the paramedics to walk her over to the ambulance and asked for his match fee aswell . The coach did well not to thump him

 

[mitre 467]

Sorry to hear that I heard someone had similar problem with their lad he's problem was not down to eplisy it was a nulogtical problem with his brain he got the right treatment and the right meds he is doing ok just hope your daughter gets it sorted out specially coming towards Christmas it's really stressful 

[lurcherman 887 13,476]

44 minutes ago, Welsh_red said:

Im hoping the meeting with neurologist tommorow will mean we get a head scan.  Depending on timescale will decide if we go private . 

At the moment mrs has gone on sick from work for 2 weeks so that she is always around my daughter.  Ive gone to sleep on the sofa so my daughters on my side of the bed now so if anything happens at night my mrs is there.  

Fuckng stupid advice after the first seizure to carry on life as normal.  She could have been anywhere and had another seizure and not have anybody to catch her as she goes down 

In herself she is absolutly fine a hour after the seizure and coming out of it all . I cant help but stress inside my head 24/7 . I just want some sort of answers or feel something is moving forward 

After the second seizure when she was on the football pitch I was lying on the grass with her stroking her head making sure she kept her eyes open , her coach had been crying  , all the girls were in bits seeing their team mate and friend convulsing on the floor , the coach phoned up the league to tell them game was off and what happened.  The guy on the other end of the phone said " Havnt you got any more subs ? " . The coach went mental over the phone . The refferee came over as we were lifting my daughter up off the grass with the paramedics to walk her over to the ambulance and asked for his match fee aswell . The coach did well not to thump him

 

Your doing all you can mate I’m sure will be nothing major as you say she’s being herself which is a good sign going forward scans we be clear and just have keep eye on her which your already doing. 
 

hope alls well keep us updated. 

[Bendigo 1,533]

All the very best and I hope she's ok.